
In 5 days we get closure for this little boy. If he has to have open heart surgery or not, I will be able to relax a bit more.
Having a baby with congenital heart defects is hard.
Last night we put him to bed and I was watching him on the monitor like I always do and it just didn’t sit well with me. He looked “odd” to me, so I had Jake go check on him. He was so tired, he wouldn’t move when I said his name over the camera or when Jake picked up his legs. But finally Jake got him to squirm and my heart ached.
For 5 minutes I thought I had lost my baby. For 5 minutes I couldn’t breath.
That’s how it feels on a daily basis with a baby with a heart defect. The uncertainty is killer. So I cannot wait for Friday.
Either way, we will have a plan and a little more clarity.
